1. Introduction
Version followed: for Singing for Lung Health (SLH), the British Lung Foundation (BLF) model as set out in the 2016 consensus statement (Lewis et al., typical 60-minute session) and the BLF / Asthma + Lung UK patient information (IS37 v2.2, 2017; web page reviewed 2020). For dementia choirs, the Alzheimer's Society Singing for the Brain (SftB) model, as described by the Society's service pages (2026) and by Osman, Tischler and Schneider (2014). Other dementia choirs (care-home choirs, independent community choirs) vary and are covered only where marked [synthesis].
These are community and arts-in-health programmes, not psychotherapy and not disease treatments. SLH is a group singing activity for people with long-term lung conditions, run mainly by singing leaders who are usually not health professionals; it is an adjunct to medical respiratory care and must not be offered as an alternative to pulmonary rehabilitation (PR), medication or oxygen therapy [source: Lewis et al. 2016]. SftB is a social singing group for people living with dementia together with carers, family and friends; it is a wellbeing and peer-support activity alongside dementia care, not a treatment for dementia [source: Alzheimer's Society SftB page; Osman et al. 2014].
How change is thought to happen, as the sources describe it:
- SLH: long sung phrases lengthen the out-breath, help empty the lungs and reduce reliance on neck and shoulder muscles; attention to words and melody gives a sense of control that may lessen anxiety and panic about breathlessness; posture, abdominal muscle use and rhythmic movement support more efficient breathing; and belonging to a choir (being a singer rather than a patient) builds mood, confidence and social connection [source: Asthma + Lung UK, How can singing improve my wellbeing?; BLF IS37].
- SftB: familiar songs plus reminiscence support social inclusion, shared couple experience, conversation, mood and memory for lyrics; groups also help people come to terms with the diagnosis and connect with peers [source: Osman et al. 2014].
Evidence status, as the sources state it (for orientation only):
- Cochrane review of singing for adults with COPD (McNamara et al. 2017): low-certainty evidence that singing improves the physical component of generic quality of life (SF-36), with no clear difference in respiratory-specific quality of life (SGRQ), breathlessness (very low certainty, one study), exercise capacity, anxiety or depression; adverse events were not reported in the trials [source: Cochrane CD012296.pub2].
- The 2016 consensus found possible benefits for physical health-related quality of life and anxiety, no significant side effects, significant risk of bias and small samples, and stated there was insufficient evidence to recommend that SLH be provided routinely; PR has grade A evidence and should be offered first [source: Lewis et al. 2016].
- BLF service evaluation (uncontrolled, 12 weeks): COPD Assessment Test (CAT) improved by 1.4 points, below the 2–3 point minimal clinically important difference, with self-reported fewer GP visits and admissions and no change in anxiety, breathlessness or general quality of life [source: Lewis, Cave & Hopkinson, Brunel repository].
- Cochrane review of music-based therapeutic interventions for people with dementia (van der Steen et al. 2018; institutional settings, at least five sessions; not specific to community choirs): probably reduces depressive symptoms and overall behavioural problems at end of treatment (moderate certainty); may improve emotional well-being, quality of life and anxiety (low certainty); little or no effect on agitation, aggression or cognition [source: Cochrane CD003477.pub4 abstract]. A later update may exist [uncertain: not checked]. Community SftB evidence is mainly qualitative [source: Osman et al. 2014].
Professional frame. Neither programme is a regulated profession. SLH leaders are typically freelance singing leaders who have done SLH training; BLF leaders went through a competitive application, interview and BLF training, and Asthma + Lung UK describes its leaders as having completed quality-assured training [source: BLF service evaluation; Asthma + Lung UK wellbeing page]. In 2016 there was no accredited training programme, and competencies and standard operating procedures still needed developing [source: Lewis et al. 2016]. A current eight-week online SLH leader course (The Musical Breath) is listed as endorsed by Asthma + Lung UK [source: Culture, Health & Wellbeing Alliance listing]. SftB is run by Alzheimer's Society with experienced leaders; its group-support volunteers complete about two and a half days of essential learning and need an enhanced DBS (or Access NI) check and references [source: Alzheimer's Society SftB page; VAL volunteer role]. Music therapy is a separate, HCPC-regulated profession in the UK (BAMT is the professional association); a psychotherapist should not present running these groups as music therapy, and should not lead breathing-retraining components for lung disease without SLH training and respiratory-team input [synthesis].
2. Framework
SLH programme format [source: Lewis et al. 2016; BLF service evaluation]:
- Weekly group sessions of about 60 minutes (trials used 1-hour weekly or twice-weekly classes; one community study used 90 minutes). The BLF programme evaluated ran 12 weekly sessions funded by BLF, after which leaders were encouraged to find their own funding and groups continued.
- Group sizes reported in studies ranged from about 9 to 50; the consensus does not set a size.
- The consensus suggests a graduated model: an intensive time-limited programme followed by a less intensive maintenance group, since indefinite participation may not be sustainable. Possible routes: a taster session during PR education, signposting after PR to sustain benefits, and progression to a conventional community choir.
- Referral routes in the BLF evaluation: PR teams (about a fifth), self-referral via friends, posters and Breathe Easy groups, and a small share from GPs and consultants.
- Outcome tracking: the consensus names the CAT as a strong candidate measure for feedback to participants and to check the group is working.
Typical SLH session sequence (60 minutes) [source: Lewis et al. 2016, Table 4; BLF IS37]: physical warm-up → breathing exercises → unvoiced and voiced fricatives → primal sounds → vocal warm-up with rhythm and pitch games (call and response) → formal exercises (scale or arpeggio patterns) → repertoire → optional cool-down relaxation → home practice set.
SftB format [source: Osman et al. 2014; Alzheimer's Society pages; VAL volunteer role]:
- A standardised Alzheimer's Society service (established 2003) following one model across the UK.
- Refreshments and socialising at the start and end; a musician leads; carer and person-with-dementia pairs sit together in a large circle; voice and body warm-ups; familiar songs (plus some new ones) on a weekly theme; lyric song sheets; unison singing or rounds and harmonies; percussion where equipment allows.
- Local examples run fortnightly 90-minute sessions or six-week blocks; some are in person and online [source: Cheadle service page; VAL role; search listing for Taff group].
- Open to people with dementia at any stage plus carers, family and friends; booking is via the local service, no clinical referral is required.
Moving between stages (the sources give no formal criteria; the following is [synthesis]):
- Referral → first session: when respiratory screening (section 4) is done, the person's condition is stable, and they have a plan for what to do if symptoms flare.
- Intensive block → maintenance group or community choir: when the person can manage the warm-up and repertoire without excessive breathlessness, uses breath techniques independently and wants to continue.
- For dementia: continue as long as the person shows enjoyment or engagement, whatever their recall of sessions; review when distress, fatigue or care needs exceed what the group can safely hold.
3. Guiding principles
- Adjunct, never alternative. SLH sits alongside PR and prescribed treatment, and is not a substitute for PR [source: Lewis et al. 2016]. In practice: ask whether PR has been offered before or alongside the referral.
- Participant, not patient. Members see themselves as choir members rather than patients [source: Asthma + Lung UK wellbeing page]. In practice: keep clinical talk out of the group; handle medical matters with the person and their team.
- No musical ability needed. [source: BLF IS37; Alzheimer's Society SftB page]. In practice: frame the referral as social and enjoyable, not as a performance.
- Leader knows the condition. Leaders should understand the person's lung condition so activities are safe for them [source: Asthma + Lung UK wellbeing page]. In practice: with consent, pass relevant respiratory information to the leader.
- Tolerance of cough and breathlessness. Cough is common and may make conventional choirs unsuitable; SLH groups are a more tolerant setting [source: Lewis et al. 2016]. In practice: tell the client that coughing, pausing and sitting down are normal there.
- Phrase length matches breath. Repertoire is chosen for suitable phrase lengths, breath points, range and tempo [source: Lewis et al. 2016]. In practice: if adapting songs yourself, shorten phrases and slow the tempo.
- Exhale focus for obstructive disease. Groups with mainly COPD include exercises to prolong exhalation [source: Lewis et al. 2016]. In practice: never push breath-holding or forced inhalation.
- Careful language. "Diaphragmatic breathing" means something different in singing than in physiology [source: Lewis et al. 2016]. In practice: describe what the body does rather than use technical breathing terms with respiratory clients.
- Learn by ear, no notation. Songs are taught by call and response with song sheets [source: Lewis et al. 2016; Osman et al. 2014]. In practice: no-one should need to read music.
- Dyad inclusion in dementia. Person and carer attend and sit together; people can join at any stage of dementia [source: Osman et al. 2014; Cheadle service page]. In practice: refer the pair, and consider the carer's own needs.
- Value in the moment. Benefits may be short-lived because people may not recall sessions [source: Osman et al. 2014]. In practice: judge benefit by in-session engagement and mood, not recall.
- Familiar songs and themes. Familiar songs and a weekly theme prompt reminiscence [source: Osman et al. 2014]. In practice: find out which songs matter to the person, and which are painful.
- Activity, not therapy. Volunteers give no personal care, advice or guidance [source: VAL volunteer role]; group leaders are not clinicians. In practice: the psychotherapist keeps clinical work (grief, trauma, diagnosis adjustment, carer strain) in therapy and keeps the boundary clear [synthesis].
- Safety first and safeguarding. Volunteers are DBS-checked and referenced for the safety of people with dementia [source: VAL volunteer role]. In practice: check that any group you refer to has safeguarding arrangements [synthesis].
4. Intervention inventory
The inventory has three parts: A, the psychotherapist's own tasks (referral, liaison, risk handover, consent); B, SLH session components as the BLF consensus and Asthma + Lung UK describe them; C, SftB session components. Parts B and C describe what the group leader does, so that you can prepare clients, adapt elements for a client, or co-run a group with a trained leader. They are not instructions to deliver breathing retraining for lung disease on your own.
A. Therapist tasks
A1. Deciding whether to refer
- Purpose / when: a client with a long-term lung condition or dementia (or caring for someone with dementia) who is isolated, low or anxious about breathlessness, or who wants an enjoyable shared activity [synthesis, drawing on the benefits listed by Asthma + Lung UK and Osman et al. 2014].
- Steps: (1) Explore what the client hopes for: company, enjoyment, managing breathless panic, something to do with a partner. (2) Explain plainly that it is a singing group, not therapy and not a treatment, and that no singing ability is needed [source: BLF IS37]. (3) For lung conditions, ask whether PR has been offered or completed; if not, encourage the client to ask their respiratory team, since SLH complements rather than replaces it [source: Lewis et al. 2016]. (4) Find a group: Asthma + Lung UK support-network listings and helpline (0300 222 5800), or the Alzheimer's Society dementia directory and local service finder [source: Asthma + Lung UK wellbeing page; Alzheimer's Society SftB page]. Non-specialist choirs may be enjoyable but may not offer the breathing techniques [source: Asthma + Lung UK wellbeing page]. (5) Agree what you will keep working on in therapy.
- Example language (illustrative): "This isn't treatment for your lungs and it won't replace your inhalers or rehab, but a lot of people find singing with others who get breathless too helps with the worry and the isolation."
- Watch for: expectations of cure; a client using the group to avoid PR or medical review; shame about voice or cough. Working: the client attends, describes the group as theirs, and reports feeling less alone.
A2. Respiratory screening and medical liaison before SLH
The consensus and patient pages do not set screening rules; this checklist is [synthesis] unless tagged.
- Purpose / when: before a first SLH session, and again after any exacerbation or hospital admission.
- Steps: (1) With consent, confirm the diagnosis and that the respiratory team or GP knows of the plan. (2) If the client has a chest infection or worries about their voice or health, advise them to talk to their GP first [source: Asthma + Lung UK wellbeing page; BLF IS37]. (3) Ask whether they have a written self-management or action plan and a reliever inhaler, and remind them to bring it. (4) Oxygen: sources give no guidance on oxygen use in sessions; the client should use oxygen exactly as prescribed and ask their respiratory team about singing with it, never alter it on a leader's or therapist's suggestion [source: BLF IS37 gives no oxygen advice; guidance is synthesis]. (5) Ask about recent exacerbations, unexplained chest pain, fainting, uncontrolled heart problems, recent surgery or a recent pneumothorax, and if any are present ask the medical team whether the group is suitable now. (6) Ask about voice problems (hoarseness lasting weeks) and refer to the GP if present. (7) For asthma, ask about known triggers (cold air, perfumes, dust, exertion) so the leader can know.
- Example language (illustrative): "Before you start, would you be happy for me to let your respiratory nurse know you're joining, and could you check with them about singing with your oxygen?"
- Watch for: people who are unstable or who minimise symptoms. Working: a clear medical yes, plan in hand, inhaler packed.
A3. Risk handover to the group leader
- Purpose / when: whenever you refer a client with clinical risk (respiratory, cognitive, falls, mental health) into a community group run by non-clinicians [synthesis; leaders are usually not health professionals per Lewis et al. 2016].
- Steps: (1) Get explicit consent for what will be shared and with whom. (2) Share only what the leader needs to keep the person safe: condition, mobility or seating needs, oxygen use, inhaler location, known triggers, what a flare-up looks like for this person, an emergency contact, and, for dementia, communication needs and signs of distress. (3) Do not pass on psychotherapy content. (4) Agree what the leader should do if the person becomes very breathless, unwell or distressed (stop, sit, use reliever as per their own plan, call emergency services if severe) and who contacts you. (5) Ask the venue about its first-aid arrangements and safeguarding contact.
- Example language (illustrative): "Mrs A uses oxygen and may need to sit for most of the session; her inhaler is in the front pocket of her bag; her daughter is the contact."
- Watch for: leaders being given more information than needed, or none. Working: the leader knows exactly what to watch for and whom to call.
A4. Consent and capacity in dementia
[synthesis; the sources do not set out a consent procedure for SftB. Osman et al. 2014 used separate information sheets for people with dementia and carers and written consent for research interviews.]
- Purpose / when: any referral of a person living with dementia, and any sharing of their information.
- Steps: (1) Talk directly with the person, not only the carer, in short sentences, one idea at a time, with time to respond. (2) Assume capacity unless shown otherwise; assess capacity for the specific decision (joining a group, sharing information) under your jurisdiction's law (in England and Wales, the Mental Capacity Act 2005) [uncertain: legal source]. (3) Use a simple information sheet, a picture of the venue or a taster visit. (4) If the person lacks capacity for this decision, make a best-interests decision with carers and any attorney, giving weight to the person's past and present wishes (e.g. a lifelong love of singing, or dislike of groups). (5) Treat signs of reluctance on the day (refusing to go in, distress) as meaningful, whatever was decided earlier. (6) Record the decision.
- Example language (illustrative): "There's a singing group on Tuesdays with tea and old songs. Your husband would come too. Would you like to try it once?"
- Watch for: carers deciding alone; acquiescence that hides distress. Working: the person shows willingness or enjoyment in the moment.
A5. Supporting the carer
- Purpose / when: dyads attending SftB; carers who find it hard to get to social activities [source: Osman et al. 2014 notes carer time constraints and carer support networks].
- Steps: (1) Ask what the carer gets from the group for themselves (peers, a shared activity, relief). (2) Keep space in therapy for carer strain, grief and role change, which the group does not address. (3) Help with practical barriers (transport, timing, respite). (4) Signpost carer support services as well [synthesis].
- Example language (illustrative): "It sounds as though the group is one of the few places you both enjoy together. What about something just for you?"
- Watch for: carer burnout, carers talking over the person with dementia. Working: both members of the pair want to go back.
A6. Ongoing liaison and review
- Purpose / when: after the first few sessions, at the end of a 12-week block, after illness [synthesis; 12-week blocks per BLF evaluation].
- Steps: (1) Ask the client what they notice about breathing, mood and confidence. (2) With consent, the leader may share CAT scores used for group feedback [source: Lewis et al. 2016 suggests CAT]. (3) Decide with the client whether to continue, move to a maintenance group or a community choir, or stop. (4) Feed back to the referrer or respiratory team.
- Example language (illustrative): "You said you'd been dreading the stairs less since the group. What's helped?"
- Watch for: gradual drop-out that may signal illness, low mood or a group mismatch. Working: steady attendance and the client carrying techniques into daily life.
B. Singing for Lung Health session components
B1. Physical warm-up
- Purpose / when: start of every session, to loosen the body and prepare for breathing and posture work [source: Lewis et al. 2016].
- Steps: relevant stretches and simple exercises, action songs and body percussion [source: Lewis et al. 2016]; include rhythmic movement such as clapping, stepping and swaying [source: Asthma + Lung UK wellbeing page]. Offer a seated version of every movement [synthesis].
- Example language (illustrative): "Roll your shoulders back slowly, and let them drop. Do it sitting or standing, whatever suits you today."
- Watch for: dizziness, breathlessness, balance; stop or sit anyone who is struggling [synthesis]. Working: people look more upright and relaxed.
B2. Posture and breathing-muscle awareness
- Purpose / when: early in session, to make breathing more efficient and reduce reliance on neck and shoulder muscles [source: Lewis et al. 2016; Asthma + Lung UK wellbeing page].
- Steps: (1) Show good singing positions, sitting and standing. (2) Draw attention to the muscles supporting the breath in and out, including the abdominal muscles. (3) Practise a relaxed breath in with a soft belly, then a long, slow breath out as the tummy draws in [source: BLF IS37; Asthma + Lung UK wellbeing page]. Use plain descriptions rather than "diaphragmatic breathing" [source: Lewis et al. 2016].
- Example language (illustrative): "Let your belly soften as the air comes in, then let it draw gently in as you breathe out slowly."
- Watch for: shoulders lifting, breath-holding, gasping. Working: slower, quieter breathing, less upper-chest effort.
B3. Prolonged exhalation exercises
- Purpose / when: groups that are mainly COPD (obstructive conditions) [source: Lewis et al. 2016].
- Steps: after a relaxed in-breath, breathe out gently for longer than the in-breath, without forcing or emptying to discomfort; build length gradually across weeks [source for exhale focus: Lewis et al. 2016; pacing detail synthesis].
- Example language (illustrative): "Breathe out slowly as if cooling soup, and stop the moment it feels like effort."
- Watch for: straining, coughing bouts, light-headedness. Working: longer comfortable exhalations and reported sense of control.
B4. Nasal inhalation for cough triggers
- Purpose / when: for people whose cough is triggered by breathing, e.g. cold air through the mouth [source: Asthma + Lung UK wellbeing page; BLF IS37].
- Steps: practise breathing in through the nose between phrases where time allows; choose songs with breath points long enough for this [synthesis on song choice].
- Example language (illustrative): "Where you can, take the breath in through your nose. If there isn't time, just take a small breath through your mouth."
- Watch for: people with blocked noses or who need mouth breathing; never insist. Working: fewer coughing interruptions.
B5. Unvoiced and voiced fricatives
- Purpose / when: to bring in vocal fold closure and move the exhale from passive breath to voiced sound [source: Lewis et al. 2016].
- Steps: (1) Unvoiced: sustained "fff" and "sss" on a gentle out-breath. (2) Voiced: "vvv" and "zzz". (3) Vary length and rhythm [source: Lewis et al. 2016; rhythm variation synthesis].
- Example language (illustrative): "Let a soft 'sss' out like a slow puncture... now turn it into a buzzing 'zzz'."
- Watch for: pushing too hard, running out of air. Working: steady, even sound for longer.
B6. Primal sounds
- Purpose / when: to engage the voice and breath support with short sounds [source: Lewis et al. 2016].
- Steps: short calls such as "Hey", "Ho", "Ha", led and echoed; leaders may also use playful sounds or faces as an icebreaker [source: Lewis et al. 2016; BLF IS37].
- Example language (illustrative): "Copy me: 'Hey!'... and a little bounce in the tummy as you do it."
- Watch for: self-consciousness; keep it light. Working: laughter, louder and clearer voices.
B7. Vocal warm-up with rhythm and pitch games
- Purpose / when: to warm the voice and develop rhythm and pitch, using call and response [source: Lewis et al. 2016; BLF IS37].
- Steps: the leader sings or claps a short pattern and the group echoes it, varying vocal quality, range, dynamics, timbre, pitch and rhythm [source: Lewis et al. 2016].
- Example language (illustrative): "I'll sing it, you sing it back. Don't worry about getting it right."
- Watch for: patterns too long for the group's breath. Working: confident echoing.
B8. Formal exercises (scale and arpeggio patterns)
- Purpose / when: to link a melody to the length of the out-breath [source: Lewis et al. 2016].
- Steps: set patterns such as the first five notes of a major scale, or an arpeggio, sung on one breath; repeat, extending as the group manages [source: Lewis et al. 2016; extension pacing synthesis].
- Example language (illustrative): "Five notes up and down on one easy breath. If you need a breath in the middle, take it."
- Watch for: strain at the top of the range. Working: the pattern fits more comfortably on one breath.
B9. Voice strengthening for breathy or hoarse voice
- Purpose / when: for breathy, hoarse or weak voices [source: Asthma + Lung UK wellbeing page; BLF IS37].
- Steps: explore causes such as posture or too much or too little air, and learn a safer, stronger sound [source: Asthma + Lung UK wellbeing page]. Hoarseness lasting more than a few weeks should be checked by a GP [synthesis].
- Example language (illustrative): "Let's see whether sitting taller changes how your voice sounds."
- Watch for: pain or worsening hoarseness; inhaled steroids may affect the voice, so refer medical questions on [uncertain]. Working: stronger speaking voice and stamina.
B10. Repertoire selection and teaching
- Purpose / when: the main singing section [source: Lewis et al. 2016].
- Steps: (1) Choose a balanced, mixed-genre selection with suitable phrase lengths, breath points, range and tempo. (2) Teach by ear through call and response, with song sheets rather than notation. (3) Balance sitting and standing [source: Lewis et al. 2016]. (4) Include songs with long phrases to encourage a full breath out [source: BLF IS37]. (5) Ask members for songs they love, and check for songs with painful associations (e.g. funerals, war, loss) [synthesis].
- Example language (illustrative): "We'll learn it line by line. Breathe wherever you see the little tick on the sheet."
- Watch for: phrases too long, keys too high, songs that trigger grief or traumatic memories; volume creeping up [synthesis]. Working: people sing whole phrases, ask for favourites.
B11. Breath and movement coordination
- Purpose / when: throughout, to build core strength, awareness and mobility [source: Asthma + Lung UK wellbeing page; BLF IS37].
- Steps: coordinate the out-breath with steps, sways or claps during songs; keep movements small and optional [source: BLF IS37; optionality synthesis].
- Example language (illustrative): "Sway to the right as you sing the line, and back as you breathe."
- Watch for: falls risk, people with oxygen tubing; keep paths clear [synthesis]. Working: smoother, less effortful breathing in movement.
B12. Cool-down relaxation
- Purpose / when: end of session (optional), guided relaxation focused on body and breath awareness [source: Lewis et al. 2016]; a warm-down is part of sessions [source: Asthma + Lung UK wellbeing page].
- Steps: a few minutes seated, slowing the breath, noticing tension and letting it go [synthesis on detail].
- Example language (illustrative): "Let the chair hold you. Notice your breath slowing down on its own."
- Watch for: relaxation that triggers anxiety in people who dislike focusing inward; offer eyes-open options [synthesis]. Working: people leave calmer.
B13. Home practice
- Purpose / when: between sessions, to keep up skills [source: Lewis et al. 2016].
- Steps: practise with recordings (the consensus mentions a CD) or with breath-control tools such as blowing soap bubbles [source: Lewis et al. 2016]. Keep practice short, and stop if breathless [synthesis].
- Example language (illustrative): "Try one song a day with the recording, and see how slowly you can blow a bubble."
- Watch for: overdoing it, or guilt about not practising. Working: practice becomes part of the week.
B14. Outcome monitoring with the CAT
- Purpose / when: at the start and end of a block, to give feedback to participants and check that the group functions well [source: Lewis et al. 2016].
- Steps: use the COPD Assessment Test as published by its owners (do not reproduce or alter items); compare with the 2–3 point minimal clinically important difference cited for PR [source: BLF service evaluation].
- Example language (illustrative): "This short questionnaire helps us see whether the group is making a difference for you."
- Watch for: leaders without training in questionnaire administration [source: BLF service evaluation]; scores worsening, which may mean illness and warrant medical review [synthesis]. Working: stable or improving scores and positive self-report.
C. Singing for the Brain session components
C1. Welcome and refreshments
- Purpose / when: start and end of each session, for socialising and peer support [source: Osman et al. 2014; Cheadle service page].
- Steps: volunteers set up the room, welcome people, talk with them and serve refreshments [source: VAL volunteer role]. Name badges and the same greeters each week help orientation [synthesis].
- Example language (illustrative): "Hello Joan, lovely to see you. Your usual seat by the window?"
- Watch for: swallowing difficulties and food allergies at refreshments; overstimulation in noisy arrival time [synthesis]. Working: people settle and chat.
C2. Circle seating in pairs
- Purpose / when: throughout; carer and person with dementia sit together in a large circle [source: Osman et al. 2014].
- Steps: arrange chairs in a circle with space for wheelchairs and walking aids; seat pairs together [source for circle and pairs: Osman et al. 2014; access detail synthesis; venues list wheelchair access, Cheadle service page].
- Example language (illustrative): "Come and sit together here, where you can both see the piano."
- Watch for: trip hazards, people wanting to wander; let them walk safely rather than restrain [synthesis]. Working: pairs face the group and join in.
C3. Voice and body warm-ups
- Purpose / when: opening of the music section [source: Osman et al. 2014; Alzheimer's Society SftB page].
- Steps: simple, fun vocal warm-ups and gentle body movements, led by demonstration so no verbal instructions need remembering [warm-ups: sources above; demonstration detail synthesis]. The Society describes these as vocal exercises to help brain activity and wellbeing; treat this as the Society's aim, not an established effect [source: Alzheimer's Society SftB page; framing synthesis].
- Example language (illustrative): "Watch me and copy. Big stretch... and down."
- Watch for: confusion with complex sequences. Working: people copy and smile.
C4. Weekly theme
- Purpose / when: each session has a theme, e.g. the weather or places, linking songs and reminiscence [source: Osman et al. 2014].
- Steps: introduce the theme with an object or picture, choose songs that fit, invite brief memories between songs [theme: source above; objects and prompts synthesis].
- Example language (illustrative): "Today is all about the seaside. Who remembers a trip to the coast?"
- Watch for: reminiscence that surfaces grief or trauma (e.g. wartime, lost children); move on gently and tell the carer or therapist [synthesis]. Working: people share memories and laugh.
C5. Familiar songs with song sheets
- Purpose / when: core of the session; familiar songs prompt lyric recall even when other memory is poor [source: Osman et al. 2014].
- Steps: hand out large-print lyric sheets; sing in unison with the musician; return to favourites each week [source for sheets and unison: Osman et al. 2014; large print synthesis].
- Example language (illustrative): "You'll know this one. Join in whenever you like."
- Watch for: songs tied to painful memories, or tearfulness that is not simply nostalgic [synthesis]. Working: people sing without looking at the sheet.
C6. New songs, rounds and harmonies
- Purpose / when: a mix of familiar and new songs is part of the model [source: Alzheimer's Society SftB page; Cheadle service page]; songs may be sung in rounds with harmonies [source: Osman et al. 2014].
- Steps: teach new songs by ear in short sections; use rounds only when the group can hold them [synthesis on pacing].
- Example language (illustrative): "This side will start, and this side comes in when I wave."
- Watch for: frustration if it is too hard. Working: enjoyment rather than accuracy.
C7. Percussion instruments
- Purpose / when: used when equipment allows [source: Osman et al. 2014].
- Steps: hand out light, easy-grip instruments (shakers, tambourines) and keep playing quiet enough to hear singing [instrument choice and volume synthesis].
- Example language (illustrative): "Shake along with the beat, gently."
- Watch for: loud percussion in reverberant halls, hearing aids feeding back, people startled by noise; clean shared instruments between users [synthesis]. Working: people keep the beat.
C8. Online sessions
- Purpose / when: for people who cannot travel; some local SftB groups run in person and online, including on Zoom [source: Alzheimer's Society Taff service listing and Bridgend Zoom listing, seen in search results only; uncertain].
- Steps: help the carer with the device and camera position; keep volume comfortable [synthesis].
- Example language (illustrative): "Can you both see me and the song words on the screen? Turn the sound up until it feels comfortable, not loud." [synthesis]
- Watch for: confusion with screens; carers needing technical help. Working: the pair joins regularly.
D. Group safety measures (both programmes)
D1. Infection control for group singing
Sources on this specific point are limited; the measures below are [synthesis] unless tagged.
- Purpose / when: every session, because many SLH members have reduced respiratory reserve and many SftB members are older or frail.
- Steps: (1) Ask anyone with a chest infection, fever or new cough to stay home and contact their GP [source for chest infection advice: Asthma + Lung UK wellbeing page]. (2) Use large, well-ventilated rooms or outdoors, and limit group size and length. Singing and speaking at similar volume produce similar aerosol, while loud singing can produce about 20 times the aerosol of normal speech, so keep volume moderate [source: PHE safer singing principles, 2020; this COVID-era guidance was withdrawn in 2021, so use it as principle, not current regulation]. (3) Hand hygiene at arrival and before refreshments. (4) Do not share song sheets, instruments or bubble tools without cleaning, or issue personal copies. (5) Follow current local public-health and venue advice during outbreaks; for groups linked to NHS services, follow the trust's infection-prevention policy.
- Example language (illustrative): "If you're feeling chesty this week, please stay home and ring your GP. We'll save your seat."
- Watch for: people coming in unwell out of loyalty to the group. Working: few illness-related absences across the group.
D2. Hearing safety
- Purpose / when: any session with percussion, amplification or a reverberant hall [synthesis].
- Steps: keep the overall level comfortable for speech; keep percussion and keyboard soft; seat hearing-aid users away from speakers; give people room to step out. Moderate singing volume also lowers aerosol output [source for aerosol point: PHE safer singing principles].
- Example language (illustrative): "If the shakers get too loud for you, wave at me and we'll bring it down." [synthesis]
- Watch for: people covering ears, hearing-aid whistle, tinnitus complaints. Working: everyone can hear the leader.
D3. Physical safety
- Purpose / when: every session [synthesis].
- Steps: chairs with arms for everyone; standing optional; clear walkways for walking aids and oxygen tubing; know where reliever inhalers are; first-aider and emergency procedure agreed with the venue; water available.
- Example language (illustrative): "Stay seated for anything you like. Sitting down is never wrong in this group." [synthesis]
- Watch for: dizziness on standing, falls, breathlessness beyond the person's normal, chest pain (stop and seek urgent help). Working: no incidents and people trust they can sit whenever needed.
D4. Musical trauma and emotional triggers
- Purpose / when: before and during song choice; especially in dementia reminiscence work and for people grieving or facing progressive illness [synthesis].
- Steps: ask at referral about songs to avoid (e.g. sung at a funeral, linked to abuse, war or a lost partner); share these with the leader with consent; agree a quiet signal and a place to step out; follow up in therapy.
- Example language (illustrative): "Are there any songs that would be hard for you to hear, so I can let the leader know?"
- Watch for: sudden withdrawal, tears, agitation, leaving. Working: the person can enjoy the group and feel able to step out when needed.
5. Handling problems
The sources say little about problem handling beyond the points tagged; most guidance below is [synthesis].
- Client hopes singing will cure or replace treatment. Restate that the group sits alongside medical care and PR, citing the consensus position that SLH is not an alternative to PR [source: Lewis et al. 2016]. Encourage the client to keep medical appointments and to tell their team they are singing. If the client stops medication or rehab, raise it directly and, with consent, inform the team.
- Breathless panic in the group. Before the first session, rehearse with the client what they will do: sit, lengthen the out-breath gently, use their own reliever and action plan, and step out if needed. Ask the leader to normalise pausing. Breathlessness that is unusually severe, with chest pain, blue lips, confusion or inability to speak, needs urgent medical help, not singing techniques.
- Exacerbation or hospital admission. Pause attendance; return after medical review and when the person's team agrees; re-check A2. Absence is common in long-term conditions, so plan a warm re-entry (the leader saving their seat, a call from a group member).
- Embarrassment about voice, cough or oxygen. Cough is common and SLH groups are more tolerant than conventional choirs [source: Lewis et al. 2016]; no singing ability is needed [source: BLF IS37]. Suggest a taster session or attending with a friend; Breathe Easy or PR peers may already go.
- Non-attendance and drop-out. Explore practical barriers (transport, cost, weather, oxygen logistics, carer time [carer constraints: Osman et al. 2014]), low mood and group fit. Consider online options where offered. Consider whether the drop-out means deterioration and needs medical follow-up. The BLF evaluation saw roughly half of participants provide end-of-block data, so drop-out is expected [source: BLF service evaluation].
- Mismatch with the group. If the group is too loud, too fast or too performance-focused, look for a specialist SLH or SftB group rather than a general choir, since non-specialist groups may not offer the breathing techniques [source: Asthma + Lung UK wellbeing page].
- Grief, trauma or distress triggered by songs. Agree a step-out signal; debrief in therapy; ask the leader, with consent, to avoid named songs (D4). Grief about lost singing voice, lost health or a dying partner belongs in therapy, not the group.
- Person with dementia refuses or becomes distressed. Respect refusal in the moment; try a shorter stay, a seat near the door, arriving early before the room is busy, or a different group. Do not use the group as a respite drop-off unless the service offers that. Persistent distress means the group may no longer suit the person; review in best interests with the carer (A4).
- Dementia progression. People at any stage can take part [source: Osman et al. 2014], but needs change: more seating support, more one-to-one help, closer attention to swallowing at refreshments. When the group cannot meet needs safely, discuss alternatives such as one-to-one music with a registered music therapist or music in the care setting.
- Carer dominance or conflict in the dyad. Encourage the carer to let the person answer and choose songs; in therapy, explore strain and grief. Carers dominated research interviews in SftB too, a known pattern [source: Osman et al. 2014].
- Safeguarding concerns. If you notice signs of neglect or abuse of an adult at risk (through what the client, carer or leader tells you), follow your local adult safeguarding procedures. Check that the group has a named safeguarding lead; SftB volunteers are DBS-checked [source: VAL volunteer role].
- Boundary problems: client wants the leader to act as therapist, or leader shares too much. Clarify roles: the leader runs an activity; volunteers give no personal care, advice or guidance [source: VAL volunteer role]. Keep clinical information to the risk-handover minimum (A3).
- Rupture with the therapist over the referral. A client may hear the referral as being "passed on" or as a sign therapy is ending. Name it, explain that the group is in addition to therapy, and agree how you will use what happens there in sessions.
- Infection outbreak or worry about catching infections. Apply D1; give the client permission to skip sessions when local infection levels are high; consider online sessions.
- Hearing discomfort or sensory overload. Apply D2; seat the person away from speakers and percussion; consider ear protection only if it does not isolate them.
- Outcome not improving. CAT changes of 1–2 points are within the range reported for SLH and below the PR minimal clinically important difference [source: BLF service evaluation], and Cochrane found no clear effect on breathlessness or respiratory-specific quality of life [source: McNamara et al. 2017]. Judge value by what the client prizes (enjoyment, company, confidence), and do not oversell physical benefit.
Sources
Sources:
- Singing for Lung Health: a systematic review of the literature and consensus statement (Lewis et al. 2016, npj Primary Care Respiratory Medicine 26:16080), University of Southampton repository
- Singing for Lung Health: service evaluation of the British Lung Foundation programme (Lewis, Cave & Hopkinson), Brunel University repository [uncertain: journal and year]
- Singing for lung health, British Lung Foundation information IS37 v2.2 (2017)
- How can singing improve my wellbeing? Asthma + Lung UK (reviewed September 2020)
- Singing for adults with chronic obstructive pulmonary disease (McNamara, Epsley, Coren & McKeough 2017), Cochrane CD012296.pub2
- Music-based therapeutic interventions for people with dementia (van der Steen et al. 2018), Cochrane CD003477.pub4 abstract
- Singing for the Brain, Alzheimer's Society
- Singing for the Brain – Cheadle, Alzheimer's Society service page
- ‘Singing for the Brain’: a qualitative study exploring the health and well-being benefits of singing for people with dementia and their carers (Osman, Tischler & Schneider 2014/2016, Dementia 15(6):1326–1339)
- Singing for the Brain group support volunteer, Voluntary Action Leicestershire
- Singing for Lung Health training, Culture, Health & Wellbeing Alliance listing
- COVID-19: suggested principles of safer singing, Public Health England (2020, withdrawn 2021)
- Lungs at Work summary of Lewis et al. 2016
Not drawn on: Alzheimer's Society Taff (in person and online) and Bridgend Zoom Singing for the Brain listings [uncertain]. The Asthma + Lung UK page "What happens at a singing for lung health session" is not drawn on [uncertain]. Legal framework mentioned (Mental Capacity Act 2005) is not drawn on as a source [uncertain].